An American girl, who suffers from a rare and undiagnosed syndrome that
prevents her from putting on weight, has to eat every 15 minutes in
order to stay alive. Lizzie Velasquez, 21, from Texas, who is a
communications student, weighs just 25.4 kg and has almost zero per cent
body fat, but is not anorexic. This, despite 60 small meals a day,
consisting of between 5,000 and 8,000 calories daily. Velasquez had been
born four weeks prematurely and doctors found there was minimal
amniotic fluid protecting her in the womb. Genetic experts could not
diagnose her illness, and her case fascinated doctors all over the
world. Now she is part of a study run by Professor Abhimanyu Garg in
Dallas. Garg believes Velasquez may have Neonatal Progeroid Syndrome
which causes accelerated ageing, fat loss from the face and body. People
with PRS often have triangular and prematurely aged faces with pointy
nose.
Lizzie said: “I weigh myself regularly and if I gain even one pound I get really excited. I eat every 15-20 minutes to keep my energy levels up. I eat small portions of crisps, sweets, chocolate, pizza, chicken, cake, doughnuts, ice cream, noodles and pop tarts all day long, so I get pretty upset when people accuse me of being anorexic. When I meet new people I have to say: ‘Hi, I’m Lizzie and I have this rare syndrome, I am NOT anorexic’.”
Lizzie has a brother Chris, 12, and a sister Marina, 15, who are both normal.She was born four weeks prematurely – weighing just 2lb 10oz.
Lizzie and friends.







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